FLORIDA — (VINnews) Stacey and David Ogman have not gotten much sleep since their 4 year old son, Jordan Ogman, was diagnosed in September with TECPR2, a fatal, neurodegenerative, debilitating, Jewish genetic disease. And the urgency to find a cure rapidly ticks on since none of theTECPR2 patients studied in Israel survived past childhood with […]
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